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Showing posts with label relaxing. Show all posts
Showing posts with label relaxing. Show all posts

Wednesday, 22 April 2020

Wheelchair travel abroad

My first time flying as a wheelchair user has gone pretty smoothly up until this point (so far so good).
I am sat in my seat on the plane to Turkey, ears popping continuously for the time being, one child either side of me and my husband is sat with Miss G across the aisle.
We have around a 4 hour flight and then a private transfer arranged to get us from the airport to our hotel.

Travelling through the airport with three children with autism has worried me hugely, let alone the added issues of needing a wheelchair. Recently there seems to have been a lot of publicity around lanyards with flowers on that are supposed to be a magic key almost for people who need extra assistance at an airport. Despite this I know we will all have to queue at some point, all have to go through security and all have to get on a plane when told to and sit where we are told to. And stay on the plane.
We arranged for special assistance when we made our holiday booking, printed out the airports guide for children with autism and watched their video guide online too. We answered questions, allayed fears, and made things as easy for them as we could by suggesting simple clothing and shoes, getting them a new carry on backpack each and leaving plenty of time for their bags to be checked through at home.
When we got to the airport we left our car at valet parking and made our way into the terminal building to find the special assistance desk. A man from there (not wearing the yellow jacket it mentions in the guide) took us to check in, where a lovely, friendly lady weighed our cases, put labels on our suitcases and on my wheelchair, and wished us a good holiday. We then returned to special assistance where two ladies (one in a yellow jacket but one in an orange one) took us through fast track security, bypassed the duty free smelly and bright shopping and showed us where to be when the gate opened forty minutes before our flight time.
The paperwork for the children, and the video guide covered the security procedure clearly for the children. Other than a few nerves about walking through the security arch, it all went smoothly. I had to wait and be patted down by a female worker, but I had expected that. She swabbed my hands and some other people had to remove their shoes. The workers there were all very friendly and helpful and made it as stress free as possible.
Once through into the departure lounge, the search for allergy friendly food and drinks began. We managed to locate fruit and vegetable pots, crisps and drinks in one shop then salads and a coconut yoghurt in a second. Not too bad for us. Miss A even had some soup (which we then carried around for the rest fo the time in said area until we had to get on the plane).
We ate our food, picked up some magazines and found the sensory play area for the children where they could also watch the planes out on the tarmac.
I had booked for Miss A to have a mini manicure at the departure lounge, something for her to look forward to. She set her heart on a light blue colour and they thankfully had just the right shade there. Phew. She did incredibly well sitting still for her manicure whilst the lady chatted to her about her flight and holiday. She has wanted a manicure for a long time but I have been unable to find anywhere that will see a child.
It was then time for us to be taken to the plane. Two special assistance staff appeared and took us through the queues to the plane. I was amazed at how many people there were who didn't move when asked to by the worker. I was glad I had the second worker pushing me so no blame for any bumps or bruises lay with my family.
It turned out there was another lady with a wheelchair on our flight too. We were all taken out to the plane and waited for the baggage truck to move for the ambulift to be able to load us on. The rest of my family climbed the usual stairs to board, whilst we waited. It all went very smoothly with no hassle. I was asked if I could walk to my seat once on board, and embarrassingly said no. It was alright though. They had an aisle wheelchair which I transferred onto and was wheeled to my seat in, with everyone along the way gawping. I didn't care though. I had made it onto the plane to my waiting family.

The flight itself was as smooth as the departure had been. We had already agreed we were going to eat our snacks and buy drinks on the plane, but then someone said they had a nut allergy half way through the food service (seemed odd to me) so we were all asked not to eat anything with nuts in whilst on board. Do I be that one who caused someone to have a reaction? Of course not. With all our allergies and intolerances I know what a nightmare it can be. But also I know if they had a nut allergy I would have told cabin crew when boarding the flight, not when the food trolley had already served half the aircraft. Still, that was that.
The 'are we nearly there yet?' got really really tired after an hour of the flight. I tried encouraging Miss A to watch one of her downloaded films or programmes, listen to music, colour her magic colouring book, sleep, draw, read her new magazine..... Nope. Nothing I suggested was an option until she decided it for herself (PDA to a tee). It felt like a very long flight.
My seat was meant to be by the window so others in my row would be able to get out to use the toilet. Mr J wouldn't move when I boarded though so I was sat in the middle of the three seats. This meant he had to literally camber over me to get to and from the toilet. Great. Plus he took great joy in leaning forward, thereby blocking the entire window with his head. This constantly annoyed Miss A.
When we got to the airport in Turkey, I was last to leave the plane as I waited in my seat for the staff to come and help me get down the aisle in an aisle chair. Two men appeared to do this for me, taking me directly to my waiting wheelchair. Then through the passport checks (where the maze of ribbon barrier and posts were moved away for me) and out to our private transfer.
The driver drove so carefully and slowly, dodging every pot hole, bump and crawling over speed bumps to avoid any pains. I was glad of this but also wanted to get to the hotel.

As a side note, we were on a three lane road, the equivalent of an A road in the UK, and there were children rollerblading down the hard shoulder incredibly fast, heading directly for a pulled over lorry. Then a car passed us with a lady sat in the front passenger seat holding a toddler on her lap. They think nothing of a family of 5 getting in an average taxi. The safety standards on the roads here are very very lax compared to at home.
Since arriving here in Turkey, nothing has been too much trouble for anyone local. I have noticed that people talk to me rather than to the person pushing me here. They have a lot of respect for my husband, having seen him getting me drinks and plates of food, and I have to only look at something for someone to appear from nowhere to get it for me.

I have been lifted in my chair to get up steps, slowed down on downward slopes to the beach and had people make me drinks without me asking the chefs have pushed me through the dining hall for me to select food and waiters have moved chairs, fetched food and drinks, all without me asking. In fact, often with me saying I am OK.

We ventured into a local bazaar yesterday. I had researched it before getting here. I knew where and when it was, how long it would take to walk or drive and what the streets were like. So I was fully expecting the narrow cobbled streets, the hundreds of local stalls selling their home made wears from food to shawls, lemonade to jewellery. Whilst I am saddened by my food sensitivities, I think in this case it is a benefit to me because I loved baclava. The crunchiness combined with the sweet honey... Yummy. But now I have to stick to dipping fruit in honey instead. I don't know how my husband has resisted the baclava here.
Our taxi to the bazaar arrived and the driver put two seats down at the back for the wheelchair, waited patiently for us to all get in, then loaded the wheelchair for us. The same happened when we arrived five minutes later, and on our return journey too. Here it feels as though they just see a wheelchair as an extension of the person who they will help however they can. They don't seem to view it as a problem or an added difficulty that needs fixing.

The bazaar is a local market for local people on the whole. It isn't the typical tourist market where men try to sell you jewellery and leather whilst plying you with apple tea. We found mainly women on the stalls, selling home made goods. We found lots of hand made jewellery stalls and a lady who crocheted clothes and toys. This was the ideal opportunity to pick up gifts for those back at home.
A quick wander around the town after the bazaar saw us at a marina and buying candyfloss for the children before catching a taxi back to the hotel, laden with gifts and goodies.
Our best find was the cafe where the owner spoke pretty good English. He really made the effort to make us all feel welcome, especially the children. He even explained ayran to me when I asked, chatted about where we are from and moved furniture around for the wheelchair to get in without us even asking or trying.
It was so hot down in the bazaar that the cool outdoor pools of the hotel were calling our names as we sat down for a quick light lunch before answering their calls with a splash and a sunbathe.

I have mastered the art of getting into the pool from my wheelchair and back again now. It isn't my usual wheelchair though and I have removed the footplates to make it easier to turn around and manouvure in general, but I can do it. I have hurt my back, shoulders and left arm doing this all week but there is no way I was just going to sit there and not get into the pool.
It is our last evening here now, we are being picked up tea time tomorrow for our journey home again, and I feel sad. Sad because of the weather changes and how beautiful it is here, but mostly because I know I am going back to living in one room again and being spoken over instead of spoken to.

Swimming




At my rheumatology appointment several months ago, he said the best things for me would be warm baths and swimming.
I cannot access my bathroom so the warm baths are out of the question for the time being, and I haven't got around to using the local swimming pool yet, even though I have phoned them up and discovered they have a wheelchair you can take into the water and a changing places changing room with bed too. The water there is warmer than the usual council pools and my children love it there with the river rapids and fun slide. It is just my own mind that has stopped me getting there to date.

This has been for a few reasons. Firstly my tremoring legs wobble as they shake, which I hate. It means people stare at me and I hate that too. I know the right ways to deal with it, but when it is in the moment and I am already feeling self conscious, it is not that easy. Secondly is the fact that one side of the pool, the side where I would be pushed into the water in the wheelchair, has a glass window wall with a busy café, play area and reception on the other side. Lastly, the change in me over the last year has been amazing, and not in a good way. The thought of bumping into people we know but haven't seen for some time and having that conversation where you know they feel awkward and don't know what to ask and what to not puts me off too.


7%

But last week we weren't local. We were four hours away from home in a relaxing and accessible caravan on a park full of friendly and helpful staff. With my children being home educated, it means we go away on holiday when aces are quiet. This means they can relax and enjoy things more and suffer less with anxiety and sensory overload. Generally there are far fewer children there, venues and activities are quieter and the swimming pools are emptier. The downsides are that often some of the activities get cancelled, especially daytime ones and there aren't so many opportunities for them to make friends. On this occasion t was a definite positive for the swimming pool.

The pool was a simple rectangular affair with shallow and deep ends, the latter being just 1.2metres deep. In the shallow end were a set of wide steps with a metal hand rail, then two pool ladders at either side of the deep end. On the first day I watched the children and my husband playing in the pool, having fun and was trying to decide if the effort and energy required to transfer out of and back into my wheelchair, combined with the effort of swimming would be worth it or not. Seeing them all having fun in there without me tugged at my heart strings, so when we headed back to the caravan I searched on YouTube for safe ways to transfer from the wheelchair to the pool and vice versa. I watched several videos before deciding on the approach I would take and planned to go the next day.

The next day we all put our bathers on under our clothes, grabbed all the towels we had with us and headed down to the pool complex. The lifeguards directed us in with the wheelchair, we easily found lockers and sent the children ahead into the pool with their flotation devices. I put my footplates into the locker to make it a little easier to transfer, took two towels with me and headed through the showers into the pool area.
I don't have great strength in my arms or legs, and have the added difficulty of tremoring limbs when pressure is put on them, so I knew getting into the pool would be difficult, and back out of the pool even more difficult.

We put the wheelchair at the shallow end of the pool, by the steps, next to the hand rail. Brakes on! My arm rests can be lifted up which was very useful here. I was able to hold the hand rail with my better arm whilst my husband held my left arm and I shuffled out of the front of the wheelchair, making sure my feet were placed on the first step. From there is was relatively easy to sit onto the top step and bum shuffle down into the pool whilst my husband wheeled the wheelchair to the edge, placed a towel on the seat and one over the back of the headrest for later on. The lifeguard came over to see if we needed help, but I told him we were OK until getting out of the pool.

Once I was deep enough in the water for it to help me float, I was able to swim off from the steps towards the deeper end of the pool. My children were so happy for me it was beautiful. They all came and gave me hugs in t turn, so many that I thought they might drown me.

I have always loved being in water and swimming, so have always been a relatively strong swimmer, able to get myself and my children out of any trouble in a pool or calm sea. This being my first time in water since becoming so unwell, I wasn't quite sure what to expect. As I started to swim it was quickly apparent that my arms were still able to move in a breast stroke motion, but my legs were too painful to do the same. My knees, hips and back were incredibly painful but I was able to propel myself using what motion I had in them combined with my arms. It didn't take long though before my arms felt fatigued. My son was amazing at that point and went to purchase me a pool noodle to reduce the strain on my arms. From that moment I was able to enjoy the experience more. I lay back and lay the back of my head on the noodle, lying back on the pool surface, bobbed around stretching my legs out under the water whilst laying my arms and head on the noodle and even managed to play catch with a pool ball. I did have to take regular breaks, pulling myself up on to the top step of the pool ladder, my son pushing my feet onto the rungs for me, and I was worn out around an hour before the rest of my family were ready to leave the pool, but it was worth every second.

When I was feeling exhausted I headed for the steps to sit down and rest in the warm water. Even though my wheelchair was at the side of the pool, I realised no one here knew it was mine. As I looked for a space to sit at the steps I had to practically sit on a lady's lap for her to move a little. It wasn't long before my husband and the lifeguard were there to help me out of the pool. My wheelchair was brought over and put next to the hand rail facing the pool. I bum shuffled up onto the edge of the pool, put my feet on the top step and was then lifted backwards into my chair by the lifeguard on one side and my husband on the other side. Obviously my legs were shaking all over the place but I made it.

At the side of the pool my husband was able to take my tankini top off for me whilst I covered up with a bath sheet before heading to the changing rooms to dry and dress. I was able to take my time and found it easier with my wheelchair reclining. Those who chose to peer into the cubicle and stare at me didn't see anything as I angled the wheelchair against the door opening and had the two towels to protect my modesty.

Unless you are body confident and choose a bikini, I would recommend a tankini over a one piece suit. I found I was able to dry quicker, remove the two pieces easier and if I had needed the toilet then that would also have been less of a struggle.

Once I was dressed, mu husband came and wheeled me back into the pool area so I could continue to watch the children playing. A couple of children splashed me now and then, but I didn't mind. After all, I was sat next to a swimming pool.

I was wiped out for the rest of the day and the following day, so didn't return to swimming during the holiday, but a lot of my fears have been put to rest now I know my current capabilities better.

It was also great to get to know the lifeguards during the break we had there. I knew I could trust them to help me if needed and also they allowed my children to use the pool the next day with me sat at the side in my chair (my husband wasn't feeling 100%). My son built a good relationship with one lifeguard too and the three of my children enjoyed all the extra water activities, including kayaking, water walkers and an obstacle course on water.



We have a longer family holiday booked for the summer, and I will definitely be swimming during that.